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Last step before transplant board!



Yulia had a series of appointments in the last couple days. There was one very promising update: her eyes are actually improving, even though her kidneys are not. We are hopeful that this is a sign that after her transplant she will maintain her vision for as long as possible.


Our brave girl has completed the tests and appointments needed to be evaluated by the transplant committee in order to be added to the donor list. Please pray that her unvaccinated status won't be a hindrance to her be considered for donation. Ultimately, we are hopeful that someone will come forward and be her donor.


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A Living Donor

Today we were contacted and told that Yulia has a living donor identified. We are overjoyed! This generous person does not live in NC. The surgeries will occur in separate locations and the kidney

UPDATES

First of, I want to apologize for not keeping up with this blog as well as I had hoped I would. With 11 kids, homeschooling, kids' activities, and Yulia's care, there is little time left at the end o

ACTIVE on the List

Today we got a call from the new hospital that Yulia has been activated on the transplant list. What does that mean? That means that we can also be called for a deceased kidney. While this is not o

3 Comments


lucywaite11
Dec 11, 2022

Our daughter was diagnosed with Senior’ Loken at 13 years old. I understand how rare this diagnosis is, and the chances of meeting another parent who understands what you are going through. I am here for you if you would like to contact me.

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oohcrikey
Dec 10, 2022

I am a herbalist in the UK, have you tried plant based medicine? One of our clients was stage 4 kidney disease, she went to her consultant for a 6 month check up and they wanted to discharge her, she is now stage 3. We have 3 others who are improving with their kidney disease. There may be hope for this poor girl. There are great doctors out there like Dr Peter Glidden, Dr Joel Wallach and Dr John Bergman., they may be able to help further.

Herbs such as dandelion root, burdock root, cayenne pepper, cinnamon (ceylon, not cassia),

Marshmallow Root ,

Maritime pine bark,

Pine needles,Cistus incanus,

Nettles and ashwagandha are in our tea and are very cleansin…

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Gary Willis
Gary Willis
Dec 09, 2022

This is wrong, that vaccine is a farce. It doesn't work! You still get the covid and you can transmit the covid. It dose nothing. Don't get the vaccine it's dose nothing. If I am compatible I am willing to give you one of mine. And I am not vaccinated, and I won't get vaccinated either. So iam willing to give you one of mine. God loves you little girl. I will pray for you. My name is Gary Willis in Lander Wyoming gwillis78@gmail.com, I am here for you if you need me.

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